First off, listed below are some some specific points for prayer. Following that is a more in-depth –and really beautiful– update from Brenna.
specific points for prayer:
- Pray that Elijah would be able to sleep restfully. The storms are not as intense, nor as frequent, but the smaller versions of the storms continue to interrupt his sleep patterns & he has been unable to get adequate sleep since the narcotic medications have decreased.
- Pray that he will be able to respond to commands. He is currently interactive with his eyes, but is yet to respond to commands.
- Elijah has been able to go all day wearing the passy muir valve, which is a big step toward being able to place a cap directly on his trach opening (which means breathing independently through his mouth, instead of throat), then ultimately closing off the trach & allowing him to breath normally.
- Received a visit from Cinnamon, Hunter, Forrest, and Canyon on June 12th. We visited for over an hour. Cinnamon & Scott provided a gift for Elijah of a Founder’s Bible that illustrates the many biblical connections to the founding of the United States. I know he will enjoy this.
New words from Brenna:
On Wednesday afternoon I sat in the window seat for a few brief moments. Most of the time while Randy and I are at the hospital, we are busy. Holding Elijah’s hand, wiping the sweat that drips down during the storms, ranging his arms and fingers (helping them to move), talking to him, getting ice packs, applying essential oils, picking out new background music . . . you get the idea.
Looking at the view of the mountains near Estes, the Lord impressed upon me perspective. We have hiked those mountains often enough that I could stare into the distance and picture myself there. It was sunny in Loveland but looked stormy way off. I could feel the weather changes, and what the air would feel like if I were standing there. In my mind, I was enjoying the cool air and the refreshment that God’s creation provides. My perspective is limited. But God is both where I am, and up in those beautiful mountains. He is omnipresent: everywhere at the same time. And he is outside of time.
Elijah coughs. . . I am forced back to the reality of our perspective. Elijah’s perspective is from a hospital bed. With three walls of the hospital room and a few “novel” people who catch his gaze: his perspective is limited. I snap a quick picture of the mountains outside so that Elijah can experience what he doesn’t have the ability to see for himself –yet. He studies the picture.
Our perspective of this life is limited, like Elijah’s. God has the ability to see what we do not see for ourselves –yet. His perspective is eternal. Thankfully, He snaps a picture for us in His Word. The ultimate picture is Heaven but there are many promises He provides until then. Promises that He will be with us, that He cares for us, that He gives us victory and will help us along our journey. We are able to see His perspective when we study those promises in His Word like Elijah studies the picture.
Randy was reading Pilgrims Progress again to Elijah. Fellow travelers, Christian & Hopeful have been captured by the giant Despair & are kept in his dungeon (within Doubting Castle). Christian re-discovers the Promises contained in The Word (in this allegory, the promises are a key that Christian has with him the entire time in the dungeon, but had forgotten about while he & Hopeful are held captive by the giant Despair). Upon using the key (God’s promises), Christian and Hopeful are able to escape from Despair. During the escape, as Christian and Hopeful are being chased by the giant Despair, Christian tells Hopeful to flee while he diverts the giant. Hopeful refuses to leave without Christian. The allegory in the story is that we cannot travel far from despair without hope. Our hope is in the One who has the eternal perspective. We experience the difference that hope provides when we speak with unbelievers about this tragedy. Their ‘thoughts are with us,’ they say. Their words bring no hope. Truly, it is the believers that walk this journey with us that sometimes have to bring the picture to us when we lose perspective. We are thankful for our fellow travelers to the Celestial City (and we know many named Hopeful).
Proper perspective, I believe, leads us to contentment, rest, and gratitude.
Contentment and Rest: just as picturing myself wandering in the mountains provides a vision of rest, realizing we are wandering this earth in Jesus gives us the same. We don’t know the future, but we know who holds the future and He has the perspective of a Master artist creating a beautiful work in us and through us. He created Elijah from nothing and handed him to us 19 years ago. He is recreating Elijah.
Gratitude. We are grateful for Elijah’s eye movement and tracking and his small hand movements. He is being weaned off of the narcotics (going for more than 22 hours) and has been moved to a smaller trach, breathing the room air. The autonomic neural storms are much less intense & less frequent!
It is hard to report to people who are not following our story that these are great things. They do not have our perspective, and gaze with an awkward silence at our report of his progress. But even the doctors are amazed at the complexity of an eye movement: the layers of neuronal connections and cognition required to move our eye. Are we ever grateful that thousands of times a day our eyes can move at our will and volition? Imagine what life would be like if you could only open your eyes and not have the ability to blink and move them. A matter of perspective.
The Lord impresses upon me that in this life, we choose our perspective minute by minute. We can either view our situations from His divine eternal perspective or from our finite limited one. Once again our Jesus goggles make all the difference.
~Brenna for all